Transplant : Not As Seen On TV

Hello!!  Sorry it's been a minute since I have posted anything new on my blog.  Winter is coming to a close here in central Indiana, but the cold weather still lingers making me want to stay inside and work on a few projects.  Dennis and I have been unpacking the garage, building shelving and organizing everything so that maybe by summer I can park my car in the garage again!  Our unfinished basement is full of boxes of stuff we've been sorting through.  We hope to get the majority of it into a garage sale and the memories and holiday decor neatly stored away on the shelving system Dennis built.  Our goal is to finish the basement soon, drywall, carpet, theater room, bar, extra bedroom, the works!  We are taking it one step at a time.

On a positive note, January 22nd, we welcomed our new grandson Grey Joseph Minniear into our family.  I have spent a lot of time down in southern Indiana with my son and his wife helping and snuggling baby Grey.

An update on me, I want to take a minute to thank each and every one of you who check in with me to see how I am doing.  Most days I am feeling great mentally and pretty good physically.  I get tired so easy, so each day I portion out what needs to be done around the house in between sitting down and resting. I've got no stamina what-so-ever.  Normal everyday things wear me out.  Just standing up sometimes causes my legs to feel extreme fatigue and takes my breath away. Now follow that by just walking across the room or a parking lot and I'm ready to sit right back down and catch my breath.  I am so thankful for my husband who is quick to finish a task for me or who drops me off and picks me up at the door of wherever we might be going.  I feel down sometimes because of this extreme fatigue.  I'm a go, go, go kinda person.  I love big projects and working along side my husband in the yard or the house.  But lately I feel kinda useless.  It's a good day just to keep the dishes done or to complete a whole load of laundry.  Clean the house?  Uh, give me 3 days, LOL.  Anyway, enough about that.

About Dialysis, thankfully my doctor has held off of starting dialysis.  My kidneys are still limping along as best as they can.  I've had to modify my diet; less sodium, less phosphorus, less potassium and less protein.  I take a phosphorus binder with my largest meal of the day that helps to bind the phosphorus in order for my kidneys to get rid of it.  If too much is left in the kidneys, the body tries to match that level and too much phosphorus in the body can cause heart disease.   My goal right now is to get a kidney transplant as soon as possible.

Speaking of transplants, so I'm watching my favorite medical drama and the patient needs a kidney transplant.  Of course since I need one, I watch intensely, listening to the familiar words being thrown around; GFR, BUN, Creatinine, UNOS, live donor and so on. Then it happens.  A live donor steps forward, the two are a match and within minutes they roll down the hall for surgery.  That's when I start talking out loud to my t.v..  "It doesn't happen that fast!!!!"  "What about donor education?"  "What about all of the testing that makes sure the donor's body can handle surgery and living with one kidney!"  They don't even mention that stuff.  I know, I know, Hollywood, right?  But it gives us a false assumption that the transplant procedure is a quick process.  It's not and I am living the waiting game right now.  I am blessed beyond measure that friends and family have stepped forward to be considered as a live donor for me.  Blessed, Beyond, Measure!!!!  But friends, it is a waiting game.  My possible donors and I are not only waiting for test results to come back, (blood type, tissue type and anti-rejection), (physical tests such as echo-cardiograms and urinalysis)  but we wait to be brought before a committee of surgeons, doctors, nurses, dietitians, psychologists and more with our case.  All of my medical testing, evaluations and more have been brought before the committee.  It's taken about a month to be presented to the committee since completing my testing, and I am happy to say I  have been approved as a recipient for a live donor kidney and a few weeks later I learned another committee has approved me to receive a deceased donor kidney through UNOS. Because of my blood type, O, I can only receive an O kidney, making my wait on the UNOS list about 7 years.  All of the other blood types can receive their own blood type kidney or an O kidney, shortening the time they are on the list, but not by much.   Every i must be dotted and every t must be crossed before a date for transplant is set.  At this time I do have a live donor waiting for her bloodwork results to come back to see if we are a match and I have a live donor whose committee has requested one more lab test before her final case review.  Tom Petty knew what he was saying when he sang "The waiting is the hardest part".  But no matter what results we get, what the committees decide, I know my God is bigger than my kidney disease and He has my best interest at heart.
I have learned to view waiting as the road from the promise to the praise. Isaiah 40:31But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

Help me Lord to wait.





Disclaimer: I am not a doctor. I am not a medical professional. NO information on this site should be used to diagnose, treat, prevent or cure any disease or condition.

Comments

  1. praying with you Jodie!!!! Thanks for the update!! God has and will continue to be gracious to you on this journey!! Thankful for all the support you have as youe wait!! Enjoy those grandbabies!❤❤

    ReplyDelete
  2. I'm glad to hear that you are able to hold off on dialysis. Hold off as long as you can. Most people don't take their diet serious enough, but you are so educated and understand how it all matters.

    So true about Hollywood, but I know that feeling of watching those stories very intensely too. Hoping your live donor passes all their tests and you never have to spend one minute on a machine.

    Love and prayers.... Jeanne

    ReplyDelete

Post a Comment

Popular posts from this blog

We Have A Date!

The 3 D's